IMG_8724

Cycling Through Life with MS: Paul James’ Journey with Bike the UK for MS

From the RAF to the Road: Meet Paul James (PJ)

For many, life takes unexpected turns, and for Paul James —better known as PJ—this couldn’t be more true. A lifelong sports enthusiast and former Royal Air Force serviceman, PJ has always embraced an active lifestyle. But in 2022, a sudden decline in health set him on a path he never anticipated. By January 2023, he was diagnosed with Relapsing Remitting Multiple Sclerosis (MS) , a condition that would challenge his resilience in ways he never expected. Now 55, PJ lives in West Sussex with his wife Sarah and their two miniature dachshunds. While MS may have changed some aspects of his life, it has certainly not stopped him—especially when it comes to cycling.

A Diagnosis That Changed Everything

Like many people diagnosed with MS, PJ had little understanding of the condition before his own journey began. “Beyond the initial shock and uncertainty, the emotional journey was made all the easier by the support network, information, and empathy provided through MS charities and communities,” he says. Connecting with others who understood what he was going through helped him process the news and find the strength to move forward. His biggest takeaway? “It’s good to talk. It’s so true!”

Living with MS: Adjusting to a New Normal

MS is unpredictable, and for PJ, the biggest daily challenge is fatigue. “There can be some steady periods of relatively normal life, but I have to take medication daily to help minimise the extent to which the illness might spread through my brain and spine,” he explains. Adjusting his daily schedule and work routine to accommodate his energy levels has been essential in maintaining a balanced life. While he may have had to make some adjustments, he refuses to let MS dictate what he can and cannot do.

Cycling with MS: A Source of Strength and Freedom

For PJ, cycling is more than just a pastime—it’s a critical part of his MS management. “My neurological specialist thoroughly recommended it to help with joint and muscle strength, along with the cognitive benefits and emotional uplift of doing something I absolutely love.” Fortunately, he hasn’t needed any modifications to his bike. He rides a standard road bike, commuting daily and taking longer recreational rides on weekends through the rolling hills of South Downs and the Surrey Hills.

Finding Purpose: Joining Bike the UK for MS

In 2024, PJ took on the Lon Las Cymru challenge with Bike the UK for MS, and he’s set to do it again in 2025. His motivation for riding is twofold: first, to prove to himself that MS does not define him; second, to raise funds for MS research and support groups. “I recognise my journey is part of a bigger picture of people living with MS, and we rely on a fabulous network of medical teams and support staff who regularly go above and beyond to help MS patients like me.”

The Power of Community: Meeting Fellow Riders & MS Groups

One of the most impactful aspects of riding with Bike the UK for MS has been meeting others along the way. “The opportunity to meet up with MS groups last year was fabulous! A broad mix of lovely people, young and not so young, with smiles and stories to reflect their positivity in handling this wretched illness.” These encounters reinforced his belief in the importance of community and the shared strength that comes from supporting one another.

Lessons from the Ride: Overcoming Challenges One Pedal at a Time

Every long-distance ride comes with its share of challenges, but for PJ, those challenges are what make the journey worthwhile. “The camaraderie of the fellow bikers, the experiences of the MS groups, and the personal endeavour to grind out each pedal stroke over some testy Welsh climbs filled me with incredible joy and appreciation for life. I live with MS, but I am not defined by it.”

Why You Should Ride Too: PJ’s Advice for Future Participants

PJ’s message for anyone considering an MS cycling challenge is simple: go for it. “What’s not to love? Spending time on your bike, in the beauty of wild landscapes, and getting to know new friends literally along for the ride! It’s an absolute blast and, although there are some testy bits, you ride at your own pace. It’s being part of something bigger than any one individual. I’m an old guy with MS, so if I can do it, anyone can. Give it a go!”

 

PJ’s journey is a testament to the power of resilience, community, and his spirit of adventure. Through Bike the UK for MS, he has not only found a way to continue doing what he loves, but has also contributed to a cause that supports countless others living with MS. His story serves as an inspiration to anyone facing challenges—on or off the bike.

 

Are you ready to take on your own adventure? Join Bike the UK for MS and be part of something truly life-changing. Want to support PJ on Lon Las Cymru? Donate to his challenge here.

IMG_2587

MS Stories: East Cumbria MS Society Group

Over the years, Bike the UK for MS has visited many different MS Society groups, having supported and been supported by them across many of our trips throughout the whole history of the charity. One such group is the East Cumbria MS Society Group. This is a group we have met a number of times across both our Lands End to John O’Groats trips and Sea to Sea trips. Through these meetings we build a meaningful bond with local groups, adding extra motivation and meaning to our riders efforts.

Sea to Sea 2023 Riders meeting the East Cumbria MS Society Group – photo credits: Ella Miles

Our most recent visit to the East Cumbria Group was at Penrith on the end of the first day of riding on our Sea to Sea trip, at the amazing Penrith Rugby Club who kindly let us stay overnight. The MS Society group were kind enough to share a bit about Bike the UK for MS within their most recent newsletter. Discover more about the local group, alongside some of our riders and ride leaders stories (and some amazing photos) within the Newsletter, which they have kindly let us share on here…

It is a highlight of our rides to meet and spend time with these local MS Societies, and to see the crucial work they do for those living with MS in their communities. For anyone looking to discover more about the East Cumbria MS Society group you can find them through the MS Society website; East Cumbria Group | MS Society. Additionally, if you are looking for info on your local MS Society group you can find them through the MS Societies local search tool.

Finally, discover more about our Sea to Sea trip for 2024 here, your 2024 adventure awaits!

Some of the Loughborough RAG Students having completed our July 2022 North Coast 500 Ride - Photo Credit: Unknown

University RAG Partnerships with Bike the UK for MS

Over the years, Bike the UK for MS has worked with many University RAG groups, having students from a number of different universities riding with us. Looking ahead to the 2024 Trips, we are excited to continue this fantastic partnership, working with RAG groups from Manchester, Nottingham, and Loughborough Universities. 

Some of the Loughborough RAG Students having completed our July 2022 North Coast 500 Ride – Photo Credit: Unknown

What is RAG?

But what is University RAG? RAG is an organisation through which students can discover and tackle amazing challenges whilst raising money for good causes. For example, the university RAG will often run RAG fairs with a number of challenges and causes represented. Ultimately, these fairs provide a place where students can take the opportunity to visit a number of different charity stands to discover the causes they could support and the adventures they could tackle. 

Manchester Get into Volunteering Fair

These RAG Fairs are a highlight of our off season, getting to travel out to different universities and meet some amazing people, looking to tackle the country by bike whilst raising money for Multiple Sclerosis Research and Awareness. This year we have been lucky enough to attend the Manchester Get into Volunteering fair, spending the day in the Student’s Union promoting our rides for 2024. It was great to see the interest across the board, from our 14 days of riding Land’s End to John O’Groats ride to our 3 day Sea to Sea trip.

The Bike the UK for MS stand at the Manchester RAG Fair – Photo Credit: Tommy Blake

Loughborough RAG

Looking ahead, we will be in Loughborough for the Loughborough University Unlock an Activity Night on the 9th October! This is a fantastic opportunity to share our new Loughborough RAG specific trip for 2024, that being the iconic London to Paris Route. After multiple years of students joining us on our NC500 trips, we can’t wait to tackle this new challenge with them! 

If any Loughborough students are interested please do come down and visit us. We’d love to share more information on the challenge with you, discuss bikes or even just say hello! 
If any university RAG groups or clubs are interested in partnering with us to have riders joining our trips, please do get in touch at info@biketheukforms.org, we’d love to hear from you.

Some of the amazing group from Robinson College, Cambridge who tackled our 2023 Sea to Sea trip – Photo Credit: Tommy Blake